Crohn’s and Colitis Care in the UK: The Hidden Cost and a Vision for Change

Crohn’s and Colitis Care in the UK: The Hidden Cost and a Vision for Change

Our new report sets out the UK-wide picture of IBD care, based on the results from the 2019/20 IBD Benchmarking Tool, which brings together the experiences of over 10,000 people with Crohn’s and Colitis and 72% of IBD services across the UK.

It reveals that care urgently needs to be improved. In particular:

  • Adults and children are waiting too long for a diagnosis of Crohn’s or Colitis
  • The wider symptoms of Crohn’s and Colitis, such as pain, fatigue and emotional wellbeing are often not addressed
  • People are not getting specialist advice and treatment quickly enough
  • There are not enough specialists, including IBD nurse specialists, dietitians and psychologists and care is often not joined up

Download the executive summary or full report below to find out more.

This report provides clear calls to action for political decision-makers across the four UK nations, for NHS commissioners, managers and IBD services and for health professional bodies and patient organisations. If implemented, these have the potential to transform IBD care for the future. These results, alongside the local service reports and our resources offer a practical approach to service redesign and vital recognition of the specific needs of the estimated 500,000 people living with IBD across the UK.

If you are living with IBD, you can find out more about getting involved in making better care a reality on the Crohn's & Colitis UK website.

Thank you to all IBD teams and adults and children with IBD across the UK who took part in the surveys. Without your support this report would not have been possible.

Watch the recording of our launch event for Crohn's and Colitis Care in the UK: The Hidden Cost and a Vision for Change on Tuesday 27th April 2021 below and hear from key influencers sharing best practice and their views on how IBD service provision can adapt in the midst of the pandemic and beyond.