How can I get involved?

Complete our patient survey – this will allow us to benchmark patient’s care experiences against the IBD Standards. Your feedback will highlight what local health services are doing well, and how they could improve. If you want to help us drive up standards of care, please click here.

Get involved in health service development – such as open days, patient panels or steering groups. Crohn’s & Colitis UK have developed a patient engagement toolkit that gives information and practical resources for developing healthcare services using the power of the patient voice. Please click here to explore the toolkit.

Join Crohn’s & Colitis UK’s Patient Voices Network – you’ll get relevant information and the latest opportunities to improve IBD care and services. To sign up to the Patient Voices Network, simply complete the online form here.

Come to CICRA’s family days which are suitable for families of newly diagnosed children and those who have had the condition for some time. Please click here for more information.