Information for Patients

Information for Patients

What is Inflammatory Bowel Disease?

Inflammatory Bowel Disease (IBD) affects an estimated 500,000 people in the UK.

There are two main forms:

Crohn’s Disease causes inflammation of the digestive system or gut.

Ulcerative Colitis causes inflammation and ulceration of the inner lining of the rectum and colon (the large bowel).

If you’ve recently been diagnosed with Crohn’s or Colitis and have any questions about how it might affect your life, please visit Crohn’s & Colitis UK.

Who are IBD UK?

IBD UK is a partnership of 17 patient and professional organisations working together for everyone affected by Inflammatory Bowel Disease. We’ve joined forces to develop and publish new standards that define what good care should look like for people living with IBD. Find out more about the IBD Standards.

Crohn’s & Colitis UK, CICRA and the Ileostomy & Internal Pouch Association are all part of IBD UK. Each organisation provides information, support and works to raise awareness and make a difference for people with IBD. Find out more.

How can I get involved?

You can complete our IBD Patient Survey – this will allow us to benchmark patient care experiences against the IBD Standards. Your feedback will highlight what local health services are doing well, and how they could improve your care.

If you're a healthcare professional and would like to register your service for the IBD Benchmarking Tool please click here.

Other ways to get involved.